The Relationship You Didn't Ask For: Navigating Chronic Pain and Emotional Regulation

When we talk about emotional regulation in the context of chronic illness, it can feel like we're adding another item to an already overwhelming to-do list. If you're living with chronic pain or illness, you've probably heard some version of "you need to manage your stress" or "have you tried mindfulness?" And honestly, it can feel pretty dismissive when you're dealing with real, legitimate physical suffering.

But here's the thing - emotional regulation in chronic illness isn't about fixing yourself or minimizing your experience. It's actually about the opposite: accepting what you can't control and finding ways to be with yourself differently.. safely.

The Relationship You Didn't Ask For

Licensed professional counselor Shana Evans Basset puts it perfectly when she describes chronic pain as living with "a tormentor of sorts." It's like being in an abusive relationship that you just can't leave - you wake up with pain, go to bed with pain, and never get a break from it.

The difference is, unlike other difficult relationships, you can't set boundaries by walking away from your body. You have to learn to coexist with something that feels like it's working against you every single day.

This is where that grief piece comes in that we don't talk about enough. Well, on this podcast we do, but in society we don’t!

Whether your condition has a clear diagnosis or falls into that frustrating category of "we're not really sure what's wrong," there's a profound loss to process. The life you thought you were going to have took a left turn, and now you're dealing with social loss, job loss, disability applications, years of medical appointments, fertility struggles, relationship changes - the ripple effects are enormous.

It's Not Your Fault (Really!)

I want to be crystal clear about something: your illness is not your fault. Even when we talk about stress contributing to physical symptoms, that doesn't mean you caused your condition. We live in such an individualistic society that any mention of emotional or psychological factors immediately gets translated to "it's your fault."

But stress isn't something you create in a vacuum. Stress comes from living in single- and two-parent households without multigenerational support. It comes from economic instability, lack of healthcare access, discrimination, and a million other factors completely outside your control. When researchers talk about adverse childhood experiences or prenatal stress affecting autoimmune development, they're talking about things that happened to you, not things you did wrong.

The work of emotional regulation starts with accepting that this isn't your fault - and taking responsibility for that acceptance.

What Emotional Regulation Actually Looks Like

So what does emotional regulation mean when you're dealing with chronic illness? It's not about positive thinking your way out of symptoms or "choosing joy" when you're in excruciating pain.

Real emotional regulation in this context is about learning how to get through today when there's nothing you can do today. It's about tolerating uncertainty about outcomes and accepting the amount of time that healing sometimes takes. It's about being with yourself in a different way.

Sometimes this means recognizing when your efforts to control your condition are actually increasing your stress and making symptoms worse. I see this all the time - someone gets so stressed about following the perfect anti-inflammatory diet that the stress of the diet is causing more inflammation than the foods ever did. But letting go of that control takes enormous courage. Read more about that here in my interview with Samina Qureshi!

The Diminishing Returns of "Trying Harder"

There's this cognitive pattern that makes perfect sense when you first develop it: "I can control the outcome if I just do this." We all want to feel like we have agency in our lives, especially when so much feels out of control.

But there's a point of diminishing returns. When the effort to manage your condition is increasing your stress and exacerbating your symptoms, we have to find another way. This doesn't mean giving up - it means redirecting that energy toward things that actually help.

Values work becomes crucial here. What really matters to you? What are your actual strengths - emotionally, physically, and within your community? Where can you let go, and where do you need that safety net of support to make letting go possible?

The Healing Power of Being Truly Seen

One thing I've learned through my own journey and in working with clients is that we can't do this work in isolation. We need someone who can sit with us and say, "I think you're going to be okay" when we're too terrified to take necessary risks.

For me, it was often my therapist who held that confidence when I couldn't access it myself. But it doesn't have to be a therapist - it could be a parent, a close friend, or a partner who can be that anchor for you.

The challenge is that chronic illness is incredibly isolating. Your friends and family, no matter how loving, often just can't understand what it's like to live with relentless symptoms. This is where online communities become invaluable. You need people who get it, who know what this actually feels like.

And yes, sometimes that starts with parasocial relationships - learning from content creators who share similar struggles. I found people on YouTube who taught me everything from how to clean my house when I had no energy to working out without shame. It's not the end goal, but it can be a bridge to finding real-life community.

Grief as a Pathway, Not a Destination

Here's what I want you to understand about grief in chronic illness: it's not a place to stay forever, but it is a place you need to visit. We have to grieve the missed expectations - what we thought our conversation with a friend would be like, what we thought our body would do today, what we thought our whole life would look like.

The healing that happens when we allow ourselves to fully feel these losses is profound. And I've seen it over and over - when people can move through that grief process, the healing often extends beyond the emotional realm into physical symptoms as well.

This doesn't mean grief cures chronic illness. But healing is healing, and it often happens on multiple levels simultaneously

Your Story Matters

Whether you're someone who wants to dive deep into your story or someone who just wants practical tools to move forward, your experience deserves to be honored. The work isn't always what we think it's going to be - it's often counterintuitive, asking us to do the opposite of what our minds tell us will help.

But there's profound freedom in that surrender, in trusting that something will catch you when you let go of the illusion of complete control. Healing is possible, even when it looks different than what we originally expected.

Your story is worth hearing, worth honoring, and worth the time it takes to tell it properly. And you deserve support that meets you exactly where you are, without asking you to be anywhere else first.

Disclaimer: Everything we discuss here is just meant to be general education and information. It's not intended as personal mental health or medical advice. If you have any questions related to your unique circumstances, please contact a licensed therapist or medical professional in your state of residence.

Destiny Davis, LPC CRC, is solely responsible for the content of this article. The views expressed herein may or may not necessarily reflect the opinions of the guest.

The content in this blog post comes directly from a real, human interview between Destiny and her guest on The Chronic Illness Therapist Podcast. This written version was formatted using AI. Listen to the full episode to hear the actual conversation.

Listen to Shana’s interview with me, Destiny Davis, on Ep 100: When Trying Harder Makes It Worse: A Different Approach to Chronic Illness Recovery

Listen on Apple

Listen on Spotify

 
Podcast cover art for "The Chronic Illness Therapist Podcast" with Destiny Davis, LPC CRC

Listen to Shana’s interview with me, Destiny Davis, on Ep 100: When Trying Harder Makes It Worse: A Different Approach to Chronic Illness Recovery

Listen on Apple

Listen on Spotify


Shana Evans-Bassett, a Licensed Professional Counselor, smiling wearing a lavender blouse and a gold chain necklace

Shana Evans-Bassett is a licensed professional counselor in private practice in Atlanta, Georgia, specializing in ADHD, dyslexia, attachment relationships, trauma, and the intersection of emotion regulation and human biology. She holds a bachelor's degree in psychology from the University of Georgia and a master's degree from Brunel University, with experience across hospital, clinic, and private practice settings. A member of the American Academy of Psychotherapists, Shana works with individuals, couples, and families navigating complex mental health challenges and chronic medical conditions.

Connect with Shana:

Website


Meet Destiny - The host of The Chronic Illness Therapist Podcast and a licensed mental health therapist in the states of Georgia and Florida. Destiny offers traditional 50-minute therapy sessions as well as therapy intensives and monthly online workshops for the chronic illness community.

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